![]() ![]() ![]() You can find a list of some scholarly research articles here and clinical practice guidelines here. At times, you may feel dismissed by your medical team. See the National Cancer Institutes Patient Guide to paraganglioma.įind out more about how we provide up to date medical information on these pages.Ī patient’s journey from symptoms to diagnosis to treatment, can be a long one. Watch videos on all pheo para topics presented by experts from 2019 Pheo Para Alliance Conference & our Facebook Live Webinar Series. If you are diagnosed with paraganglioma talk to your doctor about genetic testing. 30-40% of pheochromocytomas and paragangliomas are hereditary. Once diagnosed, it is recommended to be seen by a multi-disciplinary medical team with pheo para experience. Surgical treatment usually alleviates symptoms. If possible, the treatment of choice for the condition is surgery to remove the tumor(s), but there are other treatment options. Paragangliomas, if detected early, can be successfully treated and managed in the vast majority of cases. Paraganglioma in the head and neck are less likely to be metastatic than tumors in the chest, abdomen and pelvis. This figure shows where paraganglioma can be found. These non-secreting paragangliomas are often found incidentally.Īpproximately 85% of paragangliomas are in the abdomen, 12% are found in the chest, and only about 3% are in the head and neck. Although it is rare, some paragangliomas do not produce any catecholamines, so common symptoms such as high blood pressure, sweating or heart palpitations do not appear. It is these hormones that lead to persistent or episodic high blood pressure and other symptoms. Just like pheochromocytoma, paraganglioma is also characterized by the presence of an excess amount of hormones called catecholamines, which include norepinephrine (noradrenaline), epinephrine (adrenaline), and dopamine. They can occur at any age, but the peak incidence occurs in the third to fifth decade in life. They occur in both men and women equally, and they affect every race of people. It originates in the parasympathetic or sympathetic nervous system. Paraganglioma (păr′ə-găng′glē-ō′mə) is a rare, slow-growing tumor that is closely related to pheochromocytoma. SEE THIS PAGE FOR MORE INFORMATION ON COVID-19 & PHEO PARA International Symposium on Pheochromocytoma.
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